Resources for Caregivers: Links We Like

GENERAL RESOURCES

This is a broad and comprehensive website for family caregivers. You’ll find lots of short articles with helpful suggestions.

National Alliance for Caregiving

This is an excellent list of helpful websites for caregivers including finding help, tips, financial perspectives and support groups.

https://www.nia.nih.gov/health/alzheimers

The National Institute on Aging does research and also has many helpful resources.

https://www.alz.org/help-support/caregiving

The Alzheimers Association has many resources for caregivers as well.

SELF-CARE

Caregivers often find that caregiving is hard on their physical and mental health. Self-care is not a luxury; it is a necessity. Here are some articles to help you with this important task.

Forbes: Seven Ways Family Caregivers can Combat Compassion Fatigue (See #4 Caregivers Bill of Rights)

Family Caregiver Alliance: How to Take Care of Yourself

Be Independent Home Care: The Importance of Self Care for Carers: Infographic

STROKE SURVIVORS

Most of our links are related to dementia but stroke survivors and their care partners might find these sites helpful.

https://www.stroke.org/en/help-and-support/for-family-caregivers

The American Heart Association put together these articles for family caregivers.

https://strokeonward.org/

After Debra Meyerson had a stroke, she wrote a book, Identity Theft, about the profound transformation she experienced in her identity. This website is the non-profit she and her husband started to continue their work in supporting stroke survivors.

https://americanstroke.org/

The American Stroke Foundation also has many resources for wherever you are in your recovery.

LEADERS IN DEMENTIA CARE

We really appreciate the philosophy and practice approach of these leaders in dementia care:

Natali Edmonds, Dementia Careblazers
Teepa Snow, Positive Approach to Care
David Troxel, The Best Friends Approach to Alzheimers

You can explore their approaches in the links below.

ACTIVITIES FOR PEOPLE WITH DEMENTIA

Here are some great ideas about what to do when you’re spending time with someone with dementia.

Alternative Solutions in Long Term Care: Activity Ideas For Alzheimer’s/Dementia Residents

Alzheimer’s Association: 50 Activities

Home Care Assistance: Life Enrichment Guide

DRIVING AND DEMENTIA

From the Family Caregiver Alliance:

https://www.caregiver.org/resource/dementia-driving/

FINANCIAL & LEGAL PLANNING

Thinking through the legal issues particularly related to finances and health is important. Here are some places to start you thinking about these issues.

Alzheimer’s Association: Financial and Legal Planning

Advanced Care Directives: AARP (video)