GENERAL RESOURCES
AARP: Resources for Family Caregivers
This is a broad and comprehensive website for family caregivers. You’ll find lots of short articles with helpful suggestions.
National Alliance for Caregiving
This is an excellent list of helpful websites for caregivers including finding help, tips, financial perspectives and support groups.
https://www.nia.nih.gov/health/alzheimers
The National Institute on Aging does research and also has many helpful resources.
https://www.alz.org/help-support/caregiving
The Alzheimers Association has many resources for caregivers as well.
SELF-CARE
Caregivers often find that caregiving is hard on their physical and mental health. Self-care is not a luxury; it is a necessity. Here are some articles to help you with this important task.
Forbes: Seven Ways Family Caregivers can Combat Compassion Fatigue (See #4 Caregivers Bill of Rights)
Family Caregiver Alliance: How to Take Care of Yourself
Be Independent Home Care: The Importance of Self Care for Carers: Infographic
STROKE SURVIVORS
Most of our links are related to dementia but stroke survivors and their care partners might find these sites helpful.
https://www.stroke.org/en/help-and-support/for-family-caregivers
The American Heart Association put together these articles for family caregivers.
After Debra Meyerson had a stroke, she wrote a book, Identity Theft, about the profound transformation she experienced in her identity. This website is the non-profit she and her husband started to continue their work in supporting stroke survivors.
The American Stroke Foundation also has many resources for wherever you are in your recovery.
LEADERS IN DEMENTIA CARE
We really appreciate the philosophy and practice approach of these leaders in dementia care:
- Natali Edmonds, Dementia Careblazers
- Teepa Snow, Positive Approach to Care
- David Troxel, The Best Friends Approach to Alzheimers
You can explore their approaches in the links below.
Dr. Natali Edmonds: Dementia Careblazers
Dr. Natali N. Edmonds, PsyD ABPP, Board Certified Geropsychologist
Four Steps to Help You Decide You Should Try to Change Unhealthy Dementia Behaviors (video)
Five Tips for Talking to Your Loved One with Dementia (video)
Top Three Reasons Your Loved One with Dementia Needs Nursing Home Care (video)
Dementia and Sundowning: Tips to Help You Manage Sundowning (video)
How to Talk to Someone When They Are Afraid of Saying the Wrong Thing (video)
Ten Tips for Calming your Loved One with Dementia (video)
Teepa Snow: Positive Approach to Care
Ten With Teepa Snow: Causes of Accelerated Confusion (video)
Teepa Snow: Challenging Behaviors (video)
Teepa Snow: Positive Approach to Care
Teepa Snow: Five Challenging Dementia Behaviors Explained
Teepa Snow: An Interview: What Is it Like to Live with Dementia
David Troxel: Best Friends Approach
ACTIVITIES FOR PEOPLE WITH DEMENTIA
Here are some great ideas about what to do when you’re spending time with someone with dementia.
Alternative Solutions in Long Term Care: Activity Ideas For Alzheimer’s/Dementia Residents
Alzheimer’s Association: 50 Activities
Home Care Assistance: Life Enrichment Guide
DRIVING AND DEMENTIA
From the Family Caregiver Alliance:
https://www.caregiver.org/resource/dementia-driving/
FINANCIAL & LEGAL PLANNING
Thinking through the legal issues particularly related to finances and health is important. Here are some places to start you thinking about these issues.
Alzheimer’s Association: Financial and Legal Planning
Advanced Care Directives: AARP (video)
OTHER LINKS WE LIKE
We handpicked some articles and videos we’ve found really helpful.
Personal Care for Someone with Dementia
Early Onset Alzheimers: I Will Remember For You: Steve and Mary’s Story (video)
Communicating with Someone Living with Dementia
Alzheimer’s Association: Inside the Brain, Brain Basics and Alzheimer’s Effect
Alzheimer’s Association: Sundowning
National Institute on Aging: Tips for Coping with Sundowning
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